CMAAO Resolution on Ethical Frameworks for Health Databases and Human Genetic Databases: Adopted by the CMAAO General Assembly in Manila, the Philippines on September 24-26, 2014.
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چکیده
Rapid advancement in information and communication technology (ICT) has enabled vast amounts of health related information including genetic information to be collected, processed, analyzed and integrated, which in turn has contributed to unprecedented breakthroughs in medicine. At the same time, an individual’s health related information including physical condition, illness, treatment, medical history, family history and genetic information is one of the most sensitive types of personal information to be fully protected. For such reasons, any ethical framework on the handling of personal health information including genetic information should follow strict principles designed to guarantee individual rights by taking into full consideration such special characteristics. This resolution aims to reaffirm the special characteristics involved in the collection and use (for both research and non-research purposes) of health and genetic information and to propose an ethical framework that reflects such special characteristics. The resolution’s primary objective is to propose principles that reflect the regional characteristics of Asia and Oceania in order to provide direction and guidelines to NMAs in this region in their efforts to play a leading role in related fields. Ultimately, CMAAO hopes to contribute to public health and human rights by encouraging the governments and all the related people to urgently develop the statutes that clearly require protection of personal health information and explicitly stipulate the permitted scope of usage of such health information.
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عنوان ژورنال:
- Japan Medical Association journal : JMAJ
دوره 57 4 شماره
صفحات -
تاریخ انتشار 2014